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Indu Navar founded the Peter Cohen Foundation and EverythingALS after her husband, Peter Cohen, passed away from ALS. With a strong background in technology, she aims to leverage innovations in AI and data analytics to improve the diagnosis and treatment of ALS and other neurodegenerative diseases. The foundation focuses on using sensors and algorithms to monitor patient conditions and predict disease progression.
Navar emphasizes the need for a shift in how ALS is diagnosed and treated, highlighting the outdated methods currently in use. By employing citizen-driven research and AI tools, the foundation seeks to engage patients directly in the research process, creating a more effective approach to understanding and combating ALS. The ultimate goal is to fill the gaps in care and research, paving the way for potential cures.
• AI tools are used to monitor ALS patients' conditions remotely.
• Citizen-driven research engages patients directly in ALS studies.
Generative AI refers to algorithms that can create new content based on input data, which is used in the EverythingALS app to assist patients.
Patient-reported outcomes are metrics based on patients' self-assessments, which are currently outdated in ALS evaluations.
Predictive analytics involves using data to forecast future outcomes, applied here to anticipate ALS progression through sensor data.
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